Posts tagged “Spinocerebellar Ataxia

1 Litre of Tears / The End of a Revolution


1 Litre of Tears  -  Front DVD Cover  -  Japanese Release

Asae Ōnishi is the lead actress, starring as Aya Kito. 9th grader (third year of junior high school) Aya Kito collapses on the way to school.  Dr. Yamamoto discovers that Aya has spinocerebellar ataxia, a fatal and incurable disease that handicaps the body.  Aya’s mother and Dr. Yamamoto let Aya record in a diary to tell her story and to live her life to the fullest.

2005 –  Certificate: Unknown  –  Japanese Film
7.5 out of 10

Last Friday was Halloween. It was also the hottest ever Halloween on record in England, 24C.  Unfortunately I missed out on most of it as I left Cactus World and went to the Moon.  Yes, really.  Okay, to be more accurate I actually went to the Moon Club, although it is a long way from Cactus World and in a real foreign country too; a place called Wales.  Sadly, it was to attend the final gig by the 8th best band on the plant, Dirty Revolution.  After following the band for around five years and attending 28 gigs, everyone’s favourite alt-punk-ska-reggae-calypso-African-beats band was splitting up.  Support was from the awesome 10th best band on the planet, the New Town Kings, but it really was Dirty Revolution’s night.  Other than when the Undertones originally split up in 1983, I can’t think of a time when I’ve been so saddened by a band deciding to end it all.  The reasons appear to be the difficulty of having a young family and trying to tour, along with its alleged inability to know how to get people to sing along to the “whoo-ooos” and “yeh-yeh-yehs” etc that populate a number of its tunes.  I’d seriously considering ending it all too, but the fact that the band don’t seem to have fallen out with one another and that a quick look at my current Top Ten active bands indicates that all but two have split up and then reformed at some time or other.  This gives me hope that perhaps, one day in the dim and distant future, songs about having a fat ass, not feeling fear and highlighting the fact that Skrewdriver were a bunch of wankers, will once again reverberate around venues everywhere.  The Moon is a small club, with no air conditioning and sweat dripping from the ceiling.  The band played a long set.  I was at the front and could see a copy of the set list on the floor gradually being worked through; it was like waiting for the end of the world in some nuclear holocaust film, where all the characters can do is wait for the missiles to arrive, although before they do nothing seems any different to usual… and then all of a sudden it’s over.  The gig was filmed for a DVD.  One of the guys with a camera was menacingly close to where I was most of the time.  I guess with a decent bit of software they’ll be able to edit out the fat, old bloke trying to dance.  Joking aside, I do feel a genuine sense of loss.  This film is about loss too.  But before you read on,  I suggest you listen to some proper good music:

Dirty Revolution: Failure to Communicate
Dirty Revolution: Firing Line
Dirty Revolution: I Love Reggae
Dirty Revolution: This Community
Dirty Revolution:  Failure to Communicate (Live)

This is a movie of a book that was then a TV series. Something like that anyway.  The book (actually her diary) was written by a young woman called Aya Kitô.  She was diagnosed with Spinocerebellar ataxia when she was 15 (in 1977) and wrote a diary about her life for as long as she could, until she died when she was 26.  The film itself isn’t that great, although the actress who plays Aya is excellent.  I suspect that compared with the TV series and the diary itself, a lot was cut out to make it an appropriate length for a film.  However, there are a few really powerful scenes, often focusing on very small incidents; the one when Aya Kitô has to leave her school because it can no longer provide what she needs is pretty heart-breaking stuff.  People often seem to say that stories like this are “life-affirming” and “uplifting”.  No, they’re not. They’re sad and depressing.  I can’t see anything uplifting in a story about anyone, never mind a young person, who’s tragically struck down by a terrible illness that they had no way of avoiding, however brave he or she might be.  It’s just awful.

The soundtrack is mostly downbeat and piano driven. It fits the mood of the film well.

Movie Weather Forecast. Nope, still not started to take much notice of this yet.  Soon, I promise!

Try as I might, I couldn’t seem to find a trailer for this film anywhere.

Recommend for doctors, carers and heartless school teachers.

No cats, chainsaws or decapitations.

Top badass moment? This is a true story about a young woman with a horrible illness.  As her condition gets worse and worse, she never really stops trying to live her life as best she can, despite the increasing difficulty of doing so and the limitations of the physical world around her.  That makes her truly badass.

1 Litre of Tears at IMDB (8.1 / 10)
1 Litre of Tears at Wikipedia
1 Litre of Tears excerpt at YouTube

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